Major Surgery. Maturity Level: 2 - Ready for Review

Progressive number of diagnosis (1=first; 2= second; 3 = third; ?).
In this field must be reported the ordinal number of the tumor diagnosis for which the surgery was performed

Progressive number of relapse/progression (after FLT)

Progressive number of surgeries (1=first; 2= second; 3 = third; ?). In this field must be reported the ordinal number of the surgeries given.

Please Identify the institution were surgery was performed

Institution description

Institution name

Institution address

Institution city

Institution country

Date of surgery (dd/mm/yyyy). If the date is unkown or partially missed insert the year at the best of your knowledge.

Please describe the type of surgery (is a free text section, no coding). In case of surgery on pair organs specify which organ (right or left) was operated.

Was one of these organs involved ? (Oesophagus; Abdomen; Brain; Face; Liver; Spine; Spinal Cord; Sympathetic nerves; Chest/thorax; Pelvis)

During surgery it is possible that some organs are 'sacrified' either to allow a radical excision of the tumor or on purpose (spleen) for staging procedures. In case of partial resection of an organ (e.g. thyroid, kidney), the organ is not 'sacrified', this type of surgery should be then reported only in the 'tumor description' For other organs (e.g. hypothalamus) the only surgical procedure on it may determine some 'sacrifcice' of function, thus in this case, the organ should be coded as 'sacrified'.

(Spleen, Kidney, Eye, Lung, Ovary, Hypothalamus/hypophysis, Thyroid, Bladder, uterus Other)

Please report if a cerebrovascular shunt was inserted

This is a free text section in which it is possible to specify the type (e.g. ventriculo-peritoneal) of shunt used 1 => Ventriculo-peritoneal 2 => Ventriculo atrial 3 => Subdural_peritoneal 4 => Cisternostomy (III ventricule) 5 => Other -9922 => NK

Please specify the laterality of the shunt 1 = right 2= left 3 = midline -9911 = not applicable -9922 => NK

Define if it is still in place or is already removed 1 => Still in place 2 => Removed -9911 => NA -9922 => NK

Here it is requested only a yes or no. Details should be reported in the surgery description 1 => Yes 2 => No -9911 => Not applicable -9922 => NK

Prothesis

Please state if the survivor has a prosthesis either internal (e.g. hip replacement) or external (e.g. artificial arm)

Please define if prosthesis is internal (e.g. titanium bone) or external (e.g. artificial limb). Also in this case, details should be reported in the surgery description. 1 => Internal 2 => External -9922 => NK

Colostomy

State if a colostomy was created. Details should be reported in the surgery section.

State if a colostomy was created. Details should be reported in the surgery section. 1 => Still in place 2 => Removed -9922 =>NK

State if a gastrostomy was created. Details should be reported in the surgery section. 1 => Yes 2 => No -9911 => Not applicable -9922 =>NK

Major Surgery. Maturity Level: 2 - Ready for Review

Progressive number of diagnosis (1=first; 2= second; 3 = third; ?).
In this field must be reported the ordinal number of the tumor diagnosis for which the surgery was performed

Progressive number of relapse/progression (after FLT)

Progressive number of surgeries (1=first; 2= second; 3 = third; ?). In this field must be reported the ordinal number of the surgeries given.

Please Identify the institution were surgery was performed

Institution description

Institution name

Institution address

Institution city

Institution country

Date of surgery (dd/mm/yyyy). If the date is unkown or partially missed insert the year at the best of your knowledge.

Please describe the type of surgery (is a free text section, no coding). In case of surgery on pair organs specify which organ (right or left) was operated.

Was one of these organs involved ? (Oesophagus; Abdomen; Brain; Face; Liver; Spine; Spinal Cord; Sympathetic nerves; Chest/thorax; Pelvis)

During surgery it is possible that some organs are 'sacrified' either to allow a radical excision of the tumor or on purpose (spleen) for staging procedures. In case of partial resection of an organ (e.g. thyroid, kidney), the organ is not 'sacrified', this type of surgery should be then reported only in the 'tumor description' For other organs (e.g. hypothalamus) the only surgical procedure on it may determine some 'sacrifcice' of function, thus in this case, the organ should be coded as 'sacrified'.

(Spleen, Kidney, Eye, Lung, Ovary, Hypothalamus/hypophysis, Thyroid, Bladder, uterus Other)

Please report if a cerebrovascular shunt was inserted

This is a free text section in which it is possible to specify the type (e.g. ventriculo-peritoneal) of shunt used 1 => Ventriculo-peritoneal 2 => Ventriculo atrial 3 => Subdural_peritoneal 4 => Cisternostomy (III ventricule) 5 => Other -9922 => NK

Please specify the laterality of the shunt 1 = right 2= left 3 = midline -9911 = not applicable -9922 => NK

Define if it is still in place or is already removed 1 => Still in place 2 => Removed -9911 => NA -9922 => NK

Here it is requested only a yes or no. Details should be reported in the surgery description 1 => Yes 2 => No -9911 => Not applicable -9922 => NK

Prothesis

Please state if the survivor has a prosthesis either internal (e.g. hip replacement) or external (e.g. artificial arm)

Please define if prosthesis is internal (e.g. titanium bone) or external (e.g. artificial limb). Also in this case, details should be reported in the surgery description. 1 => Internal 2 => External -9922 => NK

Colostomy

State if a colostomy was created. Details should be reported in the surgery section.

State if a colostomy was created. Details should be reported in the surgery section. 1 => Still in place 2 => Removed -9922 =>NK

State if a gastrostomy was created. Details should be reported in the surgery section. 1 => Yes 2 => No -9911 => Not applicable -9922 =>NK

Major Surgery. Maturity Level: 2 - Ready for Review

Progressive number of diagnosis (1=first; 2= second; 3 = third; ?).
In this field must be reported the ordinal number of the tumor diagnosis for which the surgery was performed

Progressive number of relapse/progression (after FLT)

Progressive number of surgeries (1=first; 2= second; 3 = third; ?). In this field must be reported the ordinal number of the surgeries given.

Please Identify the institution were surgery was performed

Unique id for the element within a resource (for internal references). This may be any string value that does not contain spaces.

May be used to represent additional information that is not part of the basic definition of the element. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension.

There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

• value @ url

May be used to represent additional information that is not part of the basic definition of the element and that modifies the understanding of the element in which it is contained and/or the understanding of the containing element's descendants. Usually modifier elements provide negation or qualification. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension. Applications processing a resource are required to check for modifier extensions.

Modifier extensions SHALL NOT change the meaning of any elements on Resource or DomainResource (including cannot change the meaning of modifierExtension itself).

Modifier extensions allow for extensions that cannot be safely ignored to be clearly distinguished from the vast majority of extensions which can be safely ignored. This promotes interoperability by eliminating the need for implementers to prohibit the presence of extensions. For further information, see the definition of modifier extensions.

There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

Institution description

Institution name

Institution address

Unique id for the element within a resource (for internal references). This may be any string value that does not contain spaces.

May be used to represent additional information that is not part of the basic definition of the element. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension.

There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

• value @ url

May be used to represent additional information that is not part of the basic definition of the element and that modifies the understanding of the element in which it is contained and/or the understanding of the containing element's descendants. Usually modifier elements provide negation or qualification. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension. Applications processing a resource are required to check for modifier extensions.

Modifier extensions SHALL NOT change the meaning of any elements on Resource or DomainResource (including cannot change the meaning of modifierExtension itself).

Modifier extensions allow for extensions that cannot be safely ignored to be clearly distinguished from the vast majority of extensions which can be safely ignored. This promotes interoperability by eliminating the need for implementers to prohibit the presence of extensions. For further information, see the definition of modifier extensions.

There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

Institution city

Institution country

Date of surgery (dd/mm/yyyy). If the date is unkown or partially missed insert the year at the best of your knowledge.

Please describe the type of surgery (is a free text section, no coding). In case of surgery on pair organs specify which organ (right or left) was operated.

Was one of these organs involved ? (Oesophagus; Abdomen; Brain; Face; Liver; Spine; Spinal Cord; Sympathetic nerves; Chest/thorax; Pelvis)

During surgery it is possible that some organs are 'sacrified' either to allow a radical excision of the tumor or on purpose (spleen) for staging procedures. In case of partial resection of an organ (e.g. thyroid, kidney), the organ is not 'sacrified', this type of surgery should be then reported only in the 'tumor description' For other organs (e.g. hypothalamus) the only surgical procedure on it may determine some 'sacrifcice' of function, thus in this case, the organ should be coded as 'sacrified'.

(Spleen, Kidney, Eye, Lung, Ovary, Hypothalamus/hypophysis, Thyroid, Bladder, uterus Other)

Please report if a cerebrovascular shunt was inserted

Unique id for the element within a resource (for internal references). This may be any string value that does not contain spaces.

May be used to represent additional information that is not part of the basic definition of the element. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension.

There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

• value @ url

May be used to represent additional information that is not part of the basic definition of the element and that modifies the understanding of the element in which it is contained and/or the understanding of the containing element's descendants. Usually modifier elements provide negation or qualification. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension. Applications processing a resource are required to check for modifier extensions.

Modifier extensions SHALL NOT change the meaning of any elements on Resource or DomainResource (including cannot change the meaning of modifierExtension itself).

Modifier extensions allow for extensions that cannot be safely ignored to be clearly distinguished from the vast majority of extensions which can be safely ignored. This promotes interoperability by eliminating the need for implementers to prohibit the presence of extensions. For further information, see the definition of modifier extensions.

There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

This is a free text section in which it is possible to specify the type (e.g. ventriculo-peritoneal) of shunt used 1 => Ventriculo-peritoneal 2 => Ventriculo atrial 3 => Subdural_peritoneal 4 => Cisternostomy (III ventricule) 5 => Other -9922 => NK

Please specify the laterality of the shunt 1 = right 2= left 3 = midline -9911 = not applicable -9922 => NK

Define if it is still in place or is already removed 1 => Still in place 2 => Removed -9911 => NA -9922 => NK

Here it is requested only a yes or no. Details should be reported in the surgery description 1 => Yes 2 => No -9911 => Not applicable -9922 => NK

Prothesis

Unique id for the element within a resource (for internal references). This may be any string value that does not contain spaces.

May be used to represent additional information that is not part of the basic definition of the element. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension.

There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

• value @ url

May be used to represent additional information that is not part of the basic definition of the element and that modifies the understanding of the element in which it is contained and/or the understanding of the containing element's descendants. Usually modifier elements provide negation or qualification. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension. Applications processing a resource are required to check for modifier extensions.

Modifier extensions SHALL NOT change the meaning of any elements on Resource or DomainResource (including cannot change the meaning of modifierExtension itself).

Modifier extensions allow for extensions that cannot be safely ignored to be clearly distinguished from the vast majority of extensions which can be safely ignored. This promotes interoperability by eliminating the need for implementers to prohibit the presence of extensions. For further information, see the definition of modifier extensions.

There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

Please state if the survivor has a prosthesis either internal (e.g. hip replacement) or external (e.g. artificial arm)

Please define if prosthesis is internal (e.g. titanium bone) or external (e.g. artificial limb). Also in this case, details should be reported in the surgery description. 1 => Internal 2 => External -9922 => NK

Colostomy

Unique id for the element within a resource (for internal references). This may be any string value that does not contain spaces.

May be used to represent additional information that is not part of the basic definition of the element. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension.

There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

• value @ url

May be used to represent additional information that is not part of the basic definition of the element and that modifies the understanding of the element in which it is contained and/or the understanding of the containing element's descendants. Usually modifier elements provide negation or qualification. To make the use of extensions safe and manageable, there is a strict set of governance applied to the definition and use of extensions. Though any implementer can define an extension, there is a set of requirements that SHALL be met as part of the definition of the extension. Applications processing a resource are required to check for modifier extensions.

Modifier extensions SHALL NOT change the meaning of any elements on Resource or DomainResource (including cannot change the meaning of modifierExtension itself).

Modifier extensions allow for extensions that cannot be safely ignored to be clearly distinguished from the vast majority of extensions which can be safely ignored. This promotes interoperability by eliminating the need for implementers to prohibit the presence of extensions. For further information, see the definition of modifier extensions.

There can be no stigma associated with the use of extensions by any application, project, or standard - regardless of the institution or jurisdiction that uses or defines the extensions. The use of extensions is what allows the FHIR specification to retain a core level of simplicity for everyone.

State if a colostomy was created. Details should be reported in the surgery section.

State if a colostomy was created. Details should be reported in the surgery section. 1 => Still in place 2 => Removed -9922 =>NK

State if a gastrostomy was created. Details should be reported in the surgery section. 1 => Yes 2 => No -9911 => Not applicable -9922 =>NK